The First International Symposium on PSP & CBD

External Event - 25th to 26th Oct 2018

Join CurePSP and the PSP Association for The First International Symposium on PSP & CBD.

There will be a welcome reception the evening of Thursday, October 25, 2018 followed by a full day of scientific and clinical presentations and poster sessions on Friday, October 26, 2018. Clinical investigators from academia and pharma will present their latest research results in the field of PSP, CBD, and related diseases. Sessions include updates from the PSP Genetics Consortium, the brain banks in North America and Europe, and the latest clinical trials; patient registries and natural history studies, PSP Research Roundtable®, and biomarkers as well as key note lectures on the newest results in tauopathies.

  • A sleeping room block is available at the Melia White House across the street from the RCP at the rate of £180,00 per night (including VAT and breakfast) from October 24-28, 2018. The cutoff date is September 24, 2018. To make a reservation please call the hotel at +44 (0) 207 391 3000 or by using this link. Please note the hotel has a 14 day cancellation policy prior to October 24th or you will be subject to the full cost of the reservation. You can also check out Airbnb for a variety of other options as well!
  • Poster submission deadline is Friday, September 28, 2018. Abstracts (300 words) in a Word document along with title and affiliation must be sent to Alex Klein at All are welcome to submit however students are eligible for free registration with submission.
  • Sponsorship Opportunities - If you are interested in sponsoring this event, please click here.


Please click here to see the draft agenda.

** Agenda is subject to change.

Thursday, October 25, 2018

Royal College of Physicians, 11 St. Andrews Place; Regent's Park, London

6:00 – 6:20pm: Welcome and Introductions

  • Kate Arkell*, PSP Association, Towcester (UK)
  • Alex Klein*, CurePSP, New York, NY (USA)
  • Her Royal Highness The Duchess of Gloucester, Royal Patron, PSPA*

6:20 – 6:35pm: PSPA Clinical Research Fellow

  • Chair: Kate Arkell*, PSP Association, Towcester (UK)
  • Developing Biomarkers for PSP - Edwin Jabbari, UCL, London (UK)

6:35 – 6:50pm: CurePSP Grantee: In-Home Care

  • Chair: Alex Klein*, CurePSP, New York, NY (USA)
  • In-Home Care for PSP Patients - Jori Fleisher*, Rush University, Chicago, IL (USA)

6:50 – 7:20pm: Keynote Lecture

  • Chair: Huw Morris*, UCL, London (UK)

7:20 – 9:00pm: Posters and Cocktail Reception


Friday, October 26, 2018

Royal College of Physicians, 11 St. Andrews Place; Regent's Park, London

7:30 – 8:20am: Registration

8:20 – 8:30am: Morning Kick-Off and Welcome

  • John C. Steele*, M.D., FRCP(C)

8:30 – 8:55am: Keynote Lecture

  • Chair: Karen Duff, Columbia University, New York, NY (USA)
  • Tau-Induced Laminopathy is a Mechanistic Driver of Neurodegeneration - Bess Frost*,University of Texas San Antonio

8:55 – 9:40am: Neuropathology

  • Chair: James Rowe, University of Cambridge, Cambridge (UK)
  • Update on the Mayo Clinic Brain Bank- Dennis Dickson, Mayo Clinic, Jacksonville, FL (USA)
  • Update on the Queen Square Brain Bank - Janice Holton*, Queen Square Brain Bank, London (UK)
  • Mapping the Progression of Tauopathies - Helen Ling, UCL, London (UK)

9:40 – 10:00am: Coffee Break and Poster Session

10:00am – 12:00pm: Genetics Session and Panel Discussion

  • Chair: Jeff Friedman*, CurePSP, San Diego, CA (USA)
  • Insights into the Genetics of PSP - John Hardy*, UCL, London (UK)
  • Update on the PSP Genetics Consortium - Gerald Schellenberg, University of Pennsylvania, Philadelphia, PA (USA)
  • Epigenetics of PSP - Guenter Hoeglinger*, German Center of Neurodegenerative Dis., Munich (Germany)
  • Genetics in Other Proteinopathies - NN

  • Clinical and Genetic Variation in PSP - Huw Morris*, UCL, London (UK)
  • NINDS/NIH Funding Policies and Strategies in Genetics - Marg Sutherland, NINDS, Bethesda, MD (USA)

12:00 – 1:00pm: Lunch and Poster Session

1:00 – 1:30pm: Keynote Lecture

  • Chair: Jean Christoph Corvol, Hôpital Pitié-Salpêtrière, Paris (France)
  • Non-Genetic, Non-Antibody Novel Therapeutic Strategies in Tauopathies - Karen Duff, Columbia University, New York, NY (USA)

1:30 – 3:00pm: Clinical Research

  • Chair: Lawrence I. Golbe*,Rutgers University, New Brunswick, NJ (USA)
  • Breaking News in PSP/CBD Clinical Trials - Adam Boxer, University of California San Francisco, CA (USA)
  • How Representative is the Population Included in PSP Clinical Trials? - Jean Christoph Corvol, Hôpital Pitié-Salpêtrière, Paris (France)
  • Lesson Learnt from HD Trials - Anne Rosser*, Cardiff University, Wales (UK)
  • Pharma Updates - Panel Discussion

3:00 – 3:20pm: Coffee Break and Poster Session

3:20 – 4:05pm: Registries / Natural History Studies

  • Chair: Huw Morris*, UCL, London (UK)
  • Update on the FTD Disorder Registry - Dianna Wheaton*, FTD Disorder Registry, Dallas, Texas (USA)
  • Update on the Prospect Study and CBD Registry - John WoodsideUCL, London (UK)
  • Update on DescribePSP and ProPSP Studies - Gesine Respondek*, DZNE, Munich (Germany)

4:05 – 5:05pm: Tau Biomarkers and Imaging

  • Chair: Guenter Hoeglinger*, German Center of Neurodegen. Dis., Munich (Germany)
  • Latest Results in Tau-PET Imaging - James Rowe*, University of Cambridge, Cambridge (UK)
  • Latest Results in Fluid Biomarkers - Henrik Zetterberg, University of Gothenburg, Gothenburg (Sweden)
  • Latest Results in MRI Imaging - Jennifer Whitwell, Mayo Clinic, Rochester, MN (USA)

5:05 – 5:15pm: PSPA/CurePSP Early-Career Researcher Award + Poster Prize

5:15 – 5:25pm: Closing Remarks

  • Andrew Symons*, PSP Association, Towcester (UK)
  • David Kemp*, CurePSP, New York, NY (USA)

5:25 – 7:00pm: Poster Session and Cocktail Reception

* Confirmed speaker

For further information please visit: and

Fore more details and to register please visit

< Back to Events