Jennie Starkey

Discovery Network Advisory Board Member, My Name’5 Doddie Foundation

I was diagnosed with bulbar onset MND in September 2021. The shock of being advised that there were no significantly effective treatments for the disease, alongside my expected lifespan was like being run over by a juggernaut. Since that day it has become apparent that I am a slow progressor, 4.5 years later I am still independent and experience a fulfilling life.

Pre MND, I lectured in psychology & research, a role that was a vocation rather than a job. My focus post MND, is to be a patient voice for a community, where many lack the ability or energy to represent their perspectives. I assist on several projects with Sheffield University, sit on a research advisory board for My Name’5 Doddie Foundation, and volunteer at my local hospice, where I help their education dept. inform staff about the disease.