Resources

We have collated a number of resources below that can be used for teaching or to kickstart further research. Each resource has been seperated by topic/subject. If you know of or have created any resources that you believe would be useful in this section please contact: office@bna.org.uk

Contents

  1. What should be done?
  2. Diverse thinking in research groups
  3. Origins of medicine
  4. Early advancements in neurosurgery
  5. Psychedelic sciences
  6. Intersectionality in STEM
  7. Other associations' approaches

Health inequalities - all areas

  1. Health inequalities - stroke
  2. Health inequalities - mental health
  3. Health inequalities - epilepsy
  4. Health inequalities - dementia
  5. Health inequalities - brain injury
  6. Health inequalities - sleep health

What should be done?

Gibbs, K. (2014). Diversity in STEM: What it is and why it matters. Scientific American, 10(196), 197. 

This article addresses the value of diversity in STEM. Highlighting the positive outcomes of diversity such as the production of excellence through diverse working groups, the ability for unrecognised talent to thrive, economic growth and increased global competitiveness within STEM. 

https://blogs.scientificamerican.com/voices/diversity-in-stem-what-it-is-and-why-it-matters/?print=true

Weekes, N. Y. (2012). Diversity in neuroscience. We know the problem. Are we really still debating the solutions? Journal of Undergraduate Neuroscience Education, 11(1), A52.

The lack of racial and ethnic diversity in STEM fields requires immediate attention. Weekes (2012) argues for immediate action in four specific directions. Weekes states that we need to continue to recruit and incentivize the mentoring of a diverse pool of junior faculty. We need to introduce Under-Represented Minority (URM) students to “science in practice” through our research labs as early as possible and we need to provide the resources to allow URM students to succeed in STEM fields. Lastly, he argues that we need to encourage students of all backgrounds to “reach back” and involve themselves in science within higher education. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3592754/

Rollins, O. (2021) Towards an antiracist (neuro)science. Nat Hum Behav 5, 540–541. 

Oliver Rollins is a sociologist interested in how neuroscience research deals with and is informed by racialisation, racism, and other social processes of inequality. Within this article he discusses how neuroscientists and others working within STEM can engage in antiracist research practices and in turn contribute towards an antiracist (neuro)science.

https://doi.org/10.1038/s41562-021-01075-y

Shyamsundar, H., Asaria, A., & Bajra, I. (2020). BAME scientists: the hidden pioneers? The Biochemist42(3), 54-57. 

“2020: The year of inclusion, scrapping labels, where previous divisions become archaic and dated”. In this article, Shyamsundar, Asaria and Bajra (2020) highlight the experiences of Black, Asian and Minority Ethnic scientists as they have progressed through the decades. They go on to discuss the possibility of a future without inequality within STEM subjects and industries.

https://portlandpress.com/biochemist/article/42/3/54/225279/BAME-scientists-the-hidden-pioneers

AI Forward (2023). Building Inclusive AI: Strategies for Training Against Racism. AI Forward, [online] 16 OctoberAn ML pipeline.

With the integration of AI into various sectors and applications, the issue of bias in AI has rightfully come to the forefront of discussion. Recognizing and addressing bias in generative AI models is crucial to building inclusive technology which ensures diverse perspectives are factored, and that outcomes are both fair and equitable.

https://aifwd.com/field/building-inclusive-ai-strategies-for-training-against-racism/

Back to top

Diverse thinking in research groups

Antonio, A. L., Chang, M. J., Hakuta, K., Kenny, D. A., Levin, S., & Milem, J. F. (2004). Effects of racial diversity on complex thinking in college students. Psychological science, 15(8), 507-510.

Antonio et al., (2004) are investigating the effects of racial diversity on complex thinking in small group discussions within college students. They are assessing 357 students across three universities to determine the effect size on complexity. Results showed that racial and opinion minorities were both perceived as contributing to novelty. Generally positive effects on integrative complexity were found when the groups had racial and opinion-minority members and when members reported having racially diverse friends and classmates. The research supports claims about the educational significance of race in higher education, as well as the complexity of the interaction of racial diversity with contextual and individual factors.

https://journals.sagepub.com/doi/abs/10.1111/j.0956-7976.2004.00710.x

Hofstra, B., Kulkarni, V. V., Galvez, S. M. N., He, B., Jurafsky, D., & McFarland, D. A. (2020). The diversity–innovation paradox in science. Proceedings of the National Academy of Sciences, 117(17), 9284-9291.

Diversity breeds innovation, yet underrepresented groups that diversify organizations have less successful careers within them. Hofstra et al., (2020) found that demographically underrepresented groups innovate at higher rates than majority students. However, their novel contributions are often devalued and discounted. An example would be how novel contributions by racial minorities are taken up by other scholars at lower rates than novel contributions racial majorities. Equally impactful contributions of racial minorities are less likely to result in successful scientific careers than for majority groups. These results suggest there may be unwarranted reproduction in academic careers that discounts diversity’s role in innovation and explains the underrepresentation of some groups in academia.

https://www.pnas.org/content/117/17/9284.short

Hong, L., & Page, S. E. (2004). Groups of diverse problem solvers can outperform groups of high-ability problem solvers. Proceedings of the National Academy of Sciences, 101(46), 16385-16389.

We introduce a general framework for modelling functionally diverse problem-solving agents. In this framework, problem-solving agents possess representations of problems and algorithms that they use to locate solutions. We use this framework to establish a result relevant to group composition. We find that when selecting a problem-solving team from a diverse population of intelligent agents, a team of randomly selected agents outperforms a team comprised of the best-performing agents. This result relies on the intuition that, as the initial pool of problem solvers becomes large, the best-performing agents necessarily become similar in the space of problem solvers. Their relatively greater ability is more than offset by their lack of problem-solving diversity. 

https://www.pnas.org/content/101/46/16385.short

Back to top

Origins of medicine

Mohamed, W. M. (2008). Arab and Muslim contributions to modern neuroscience. IBRO History of Neuroscience, 169(3), 255. 

During the Dark Ages the “medical flame” was set alight by the Arabic-Islamic world. The period between the 7th and 13th centuries has been commonly neglected, despite the remarkable developments of biomedical science of the Arabic-Islamic (Falagas et al., 2006). At every stage in Arabic medical history, we can find outstanding people whose greatest contributions and efforts cannot be underestimated. This journal illustrates the advancements in Arabic-Islamic science with some examples of those whose books contributed towards the development of Medieval European neuroscience.

http://www.islamicweblibrary.com/wp-content/uploads/2019/10/Arab-and-Muslim-Contributions-to-Modern-Neuroscience.pdf

Nasser, M., Tibi, A., & Savage-Smith, E. (2009). Ibn Sina's Canon of Medicine: 11th century rules for assessing the effects of drugs. Journal of the Royal society of Medicine, 102(2), 78-80.

In his Al Hammadi Lecture at the Royal College of Physicians of Edinburgh, John Urquhart, professor of biopharmaceutical sciences at the University of California at San Francisco, contrasted Ibn Sina's Canon of Medicine (c. 1012) with Osler's Principles and Practice of Medicine. Urquhart asked himself which of the two books he would want if he was marooned and in need of a guide for practical medicine. He opted for Ibn Sina's Canon because the book presents an integrated view of surgery and medicine. Ibn Sina tells his readers, for example, how to judge the margin of healthy tissue to remove with an amputation. In contrast, Osler shunned intervention in his Principles and Practice of Medicine. The enduring respect in the 21st century for a book written a millennium earlier is testimony to Ibn Sina's achievement.

https://journals.sagepub.com/doi/full/10.1258/jrsm.2008.08k040

Syed, I. B. (2002). Islamic Medicine: 1000 years ahead of its times. Jishim, 2, 2-9.

Within a century after the death of Prophet Muhammad (peace be upon him) the Muslims not only conquered new lands, but also became scientific innovators with originality and productivity. By the ninth century, Islamic medical practice had advanced from talisman and theology to hospitals with wards, doctors who had to pass tests, and the use of technical terminology. These medical centres contained libraries, pharmacies, the system of interns, externs, and nurses. There were regulations to maintain quality control on drugs. Pharmacists became licensed professionals and were pledged to follow the physician's prescriptions. Legal measures were taken to prevent doctors from owning or holding stock in a pharmacy. The article explains the extent to which Islamic medicine advanced in the fields of medical education, hospitals, medicine and psychotherapy.

http://al-hakawati.net/Content/uploads/Culture/1293_Islamic_Medicine_Ahead_of_its_Time.pdf

Back to top

Early advancements in neurosurgery

Martin-Araguz, A., Bustamante-Martinez, C., & Moreno-Martínez, J. M. (2002). Neuroscience in Al Andalus and its influence on medieval scholastic medicine. Revista de neurología, 34(9), 877-892. 

Since the application of technical medicine by the Greeks, modern neurology has been based on a body of knowledge and cultural heritage from ancient times. In this paper Martin-Araguz et al., (2002) review the contribution made by Al Andalus to neuroscience during the Middle Ages and its repercussions on modern neurology. Andalusian doctors made major contributions to the body of knowledge about neuroscience and developed major philosophical concepts of human understanding. Abulcasis (936 1013), the father of modern surgery, developed material and technical designs which are still used in neurosurgery and Averroes suggested the existence of Parkinsons syndrome and attributed photoreceptor properties to the retina. 

https://europepmc.org/article/med/12134355

Back to top

Psychedelic sciences

George, J. R., Michaels, T. I., Sevelius, J., & Williams, M. T. (2020). The psychedelic renaissance and the limitations of a White-dominant medical framework: A call for indigenous and ethnic minority inclusion, Journal of Psychedelic Studies, 4(1), 4-15. Retrieved Jul 8, 2021. 

This review addresses this issue of psychedelics in science and the limitations of white-dominant medical framework directly. Firstly, George et al., (2020) highlight the traditional role of psychedelic plants and summarised the history of psychedelic medicine. They later go on to discuss the historical and sociocultural factors that have contributed to unequal research participation and treatment. They argue that this unequal research participation has limited the opportunities for minorities to contribute towards science. Finally, they provide an agenda for Western medical framework of healing to include a cultural focus and additional considerations for an inclusive approach to treatment development.

https://akjournals.com/view/journals/2054/4/1/article-p4.xml

Back to top

Intersectionality in STEM

Charleston, L. J., Adserias, R. P., Lang, N. M., & Jackson, J. F. (2014). Intersectionality and STEM: The role of race and gender in the academic pursuits of African American women in STEM. Journal of Progressive Policy & Practice, 2(3), 273-293. 

African American women are disproportionately underrepresented in the domains of science, technology, engineering and mathematics (STEM) in relation to their share of the United States population. Charleston et al., (2014) utilise intersectionality theory as a theoretical foundation to explore the role race and gender play in the STEM pursuits of African American women, offering suggestion of some of the strategies this population uses to accomplish STEM educational goals. 

https://www.researchgate.net/profile/Don-SawyerIii/publication/304724804_Informing_Higher_Education_Policy_and_Practice_Through_Intersectionality/links/5778823b08aead7ba074644f/Informing-Higher-Education-Policy-and-Practice-Through-Intersectionality.pdf#page=84

Cantor, N., Mack, K. M., McDermott, P., & Taylor, O. L. (2014). If not now, when? The promise of STEM intersectionality in the twenty-first century. Peer Review, 16(2), 29. 

Cantor et al., (2014) argue that the utilisation of intersectionality and diversity in research is invaluable. They suggest that an intersectional approach offers a powerful means of producing new knowledge and the more fully human social and institutional practices that will be essential for improving the quality of life for both majority and minority populations in the twenty-first century.

https://www.proquest.com/docview/1628947079?pq-origsite=gscholar&fromopenview=true

Sparks, D. M. (2017). Navigating STEM-worlds: Applying a lens of intersectionality to the career identity development of underrepresented female students of color. Journal for Multicultural Education. 

This paper aims to discuss the term intersectional trap. This is defined as the act of saying blanket statements to describe a race or group of individuals without considering variations of experience within the population. This article also provides some suggestions for research focusing on qualitative studies that explore the lived experiences of students as they form their science, technology, engineering and mathematics (STEM) identities. Finally, this article discusses the need for an intersectionality lens when considering how to retain talented female students of colour in university STEM programs.

https://www.emerald.com/insight/content/doi/10.1108/JME-12-2015-0049/full/html

Cochran, G. L., Boveda, M., & Prescod-Weinstein, C. (2020). Intersectionality in STEM Education Research. In Handbook of Research on STEM Education (pp. 257-266). Routledge. 

This article draws on critical race theory and the experiences of people from marginalized groups in STEM to support the need for intersectionality in STEM education research. It also offers a critique of apolitical discipline-based STEM education research and integrated STEM education that fails to consider intersectionality. The authors identify ways in which STEM education researchers can facilitate collaboration across education equity communities and conduct research with the power to mitigate oppressive forces in STEM education and in the STEM workforce.

https://www.taylorfrancis.com/chapters/edit/10.4324/9780429021381-24/intersectionality-stem-education-research-geraldine-cochran-mildred-boveda-chanda-prescod-weinstein

Ireland, D. T., Freeman, K. E., Winston-Proctor, C. E., DeLaine, K. D., McDonald Lowe, S., & Woodson, K. M. (2018). (Un) Hidden figures: A synthesis of research examining the intersectional experiences of black women and girls in STEM education. Review of Research in Education, 42(1), 226-254. 

In this chapter, Ireland et al., (2018) argue that intersectionality is a theoretical and methodological framework by which education researchers can critically examine why and how students in STEM fields who are members of intersecting marginalized groups have distinctive experiences related to their social identities, other psychological processes, and educational outcomes. Additionally, they have found that the current discourse on intersectionality is limited in that it does not attend to key psychological processes associated with identity and the intersectional experience in STEM education. This article highlights the ways that researchers have employed intersectionality to make the experiences of Black women and girls in STEM education more visible, or “unhidden.” https://journals.sagepub.com/doi/abs/10.3102/0091732X18759072casa_token=khw43_U_wEMAAAAA:4wXxXwAEe9A_3gt2tYx9WLxp8-5IexMmyFfSNuNqp-bd88lKmjaEHeVuPPnSMl4PJuwhHQWzikY

Back to top

Other associations' approaches

Jones-London, M. (2020). NINDS strategies for enhancing the diversity of neuroscience researchers. Neuron, 107(2), 212-214.

NINDS discusses strategies at multiple systemic levels where opportunities and interventions could be implemented to enhance neuroscience workforce diversity.

https://www.sciencedirect.com/science/article/pii/S0896627320304876

Campaign for Science and Engineering. (2014). Improving diversity in STEM. Technical Report.

This journal highlights the issue of intersectionality for people within STEM careers. The Campaign for Science and Engineering argues that women, ethnic minorities, and those with disabilities are consistently underrepresented, particularly at senior levels, in STEM. Diversity issues also persist in other sectors; however, this report focuses on improving diversity in STEM due to the existence of STEM-specific barriers and challenges, and the significant benefits that improving diversity in STEM would bring for individuals and for the UK.

https://www.voced.edu.au/content/ngv:63242

Back to top

Health inequalities - all areas

Razai, M. S., Majeed, A., & Esmail, A. (2021). Structural racism is a fundamental cause and driver of ethnic disparities in health. bmj,373.

This article argues that structural racism is a fundamental factor of racial and ethnic disparities in health. Razai et al., (2021) argue that structural racism is a cause of ethnic differences in socioeconomic status, adverse health outcomes, and ethnic inequities in health. They state that new government approach on race is divorced from reality and fails to provide any solutions to ethnic disparities in health. They believe it undermines the well-established and evidence-based role of ethnicity on health. Therefore, they suggest that outcomes will lead to a worsening of systemic inequalities, putting more ethnic minority lives at risk. 

https://blogs.bmj.com/bmj/2021/03/31/structural-racism-is-a-fundamental-cause-and-driver-of-ethnic-disparities-in-health/

Raghavan, R., & Jutlla, K. (2017). Improving the recruitment of Black, Asian and Minority Ethnic (BAME) communities in health and social care research: a review of literature.

This literature review aims to identify the barriers and enablers for recruiting people from Black, Asian and Ethnic Minority communities in research. A thematic analysis was applied to 39 papers to identify the key issues for consideration when conducting health related research with Black, Asian and Ethnic Minority communities. A number of key themes were identified as potential barriers these included language use and ability, socio-cultural factors such as issues with someone’s ethnicity, lack of knowledge about research and practical issues such as cost implications of research. 

https://www.researchgate.net/publication/313064486_Improving_the_recruitment_of_Black_Asian_and_Minority_Ethnic_BAME_communities_in_health_and_social_care_research_a_review_of_literature

Back to top

Health inequalities - stroke

Howard G, Howard VJ, Reasons for Geographic And Racial Differences in Stroke (REGARDS) Investigators. Ethnic disparities in stroke: the scope of the problem. Ethnicity & Disease. 2001 ;11(4):761-768. 

This article highlights the excess stroke mortality rate among African Americans that they argue should be considered a national crisis.  Only a portion of this excess stroke mortality among African Americans can be explained by the higher prevalence of hypertension and diabetes in African Americans, and by the lower average socioeconomic status (SES) among African Americans. The majority of the excess burden of stroke mortality is affecting those between the ages 35-64 who are African Americans living in the South-eastern United States. While overall stroke mortality rates have been rapidly declining the magnitude of the relative increased risk of dying from a stroke among African Americans has remained largely unchanged. They argue that efforts to reduce ethnic disparities in stroke mortality have been unsuccessful.

https://europepmc.org/article/med/11763299

Cruz-Flores, S., Rabinstein, A., Biller, J., Elkind, M. S., Griffith, P., Gorelick, P. B., ... & Valderrama, A. L. (2011). Racial-ethnic disparities in stroke care: the American experience: a statement for healthcare professionals from the American Heart Association/American Stroke Association. Stroke, 42(7), 2091-2116.

The purpose of this article is to describe the effect of race and ethnicity on stroke epidemiology, personal beliefs, access to care, response to treatment, and participation in clinical research. Cruz-Flores et al., (2011) acknowledge that the state of knowledge on the main factors that may explain disparities in stroke care have gaps that need to be filled to guide future research. Acknowledging the presence of disparities and understanding the factors that contribute to them are necessary first steps. 

https://www.ahajournals.org/doi/full/10.1161/STR.0b013e3182213e24

Stansbury, J. P., Jia, H., Williams, L. S., Vogel, W. B., & Duncan, P. W. (2005). Ethnic disparities in stroke: epidemiology, acute care, and postacute outcomes. Stroke, 36(2), 374-386.

Evidence for ethnic disparities in stroke incidence, severity, and mortality has continued to rise over the past few decades. However, for disparities in acute management and rehabilitation remains more ambiguous. The objective of this report is to summarize the current evidence from stroke epidemiology and studies focusing on disparities in stroke care and disability, while also suggesting courses for action. Minority ethnic groups have higher rates or more severe stroke, but variations in prognosis for clinical outcomes other than mortality remain less certain. 

https://www.ahajournals.org/doi/abs/10.1161/01.STR.0000153065.39325.fd

Levine, D. A., Duncan, P. W., Nguyen-Huynh, M. N., & Ogedegbe, O. G. (2020). Interventions targeting racial/ethnic disparities in stroke prevention and treatment. Stroke, 51(11), 3425-3432.

Systemic racism is a public health crisis. Systemic racism and racial/ethnic injustice produce racial/ethnic disparities in health care and health. Substantial racial/ethnic disparities in stroke care and health exist and result predominantly from unequal treatment. This report aims to highlight selected mediations to reduce racial/ethnic disparities in stroke prevention and treatment. Levine et al., (2020) review the social determinants of health and the determinants of racial/ethnic disparities in care. This article also summarises selected interventions aimed at reducing stroke risk factors, increasing awareness of stroke symptoms, and improving access to care for stroke because these interventions hold the promise of reducing racial/ethnic disparities in stroke death rates. Finally, Levine et al., (2020) acknowledge the gaps in research and suggest future directions. 

https://www.ahajournals.org/doi/abs/10.1161/STROKEAHA.120.030427

Pathak, E. B., & Sloan, M. A. (2009). Recent racial/ethnic disparities in stroke hospitalizations and outcomes for young adults in Florida, 2001–2006. Neuroepidemiology, 32(4), 302-311.

Pathak & Sloan (2009) have analysed the 2001–2006 trends in stroke hospitalizations and hospital case-fatality for black, Hispanic, and white adults aged 25–49 years in Florida. They found that age-adjusted stroke hospitalization rates for black Americans were over three times higher than rates for white Americans. The in-hospital fatality rate for all strokes was highest among black Americans at 10% compared with 9% of white Americans and Hispanic Americans at 8.2%. Conclusively, Pathak and Sloan (2020) discovered a strong and persistent black-white disparity in stroke hospitalization rates for young adults. 

https://www.karger.com/Article/Abstract/208795

Gutierrez, J., Koch, S., Dong, C., Casanova, T., Modir, R., Katsnelson, M., ... & Rundek, T. (2014). Racial and ethnic disparities in stroke subtypes: a multiethnic sample of patients with stroke. Neurological sciences, 35(4), 577-582. 

Gutierrez et al., (2014) evaluate the prevalence that vascular risk factors account for differences observed in stroke subtypes by race/ethnicity. Patients with acute stroke were prospectively enrolled in the Miami Stroke Registry. Patients’ demographic, clinical and radiological characteristics were systematically collected. The Five subtypes of Ischemic stroke were ascertained using the TOAST criteria. The sample was divided into Non-Hispanic Whites (NHW), Hispanics, African Americans (AA), and Non-Hispanic Black Caribbean (NHBC). Their results suggest that the vascular risk factors prevalence among different racial and ethnic groups partially explains disparities found in the prevalence of some stroke subtypes.

https://link.springer.com/article/10.1007/s10072-013-1561-z

Back to top

Health inequalities - mental health

McGuire, T. G., & Miranda, J. (2008). New evidence regarding racial and ethnic disparities in mental health: Policy implications. Health Affairs, 27(2), 393-403.

This journal reviews the evidence for mental health and mental health care disparities, comparing them to patterns in health. McGuire & Miranda (2008) highlight strategies for addressing disparities in health care, such as improving access to quality of care and should also work to eliminate mental health care disparities. In addition, they suggest that a diverse mental health workforce, as well as provider and patient education, are important in eliminating mental health care disparities. 

https://www.healthaffairs.org/doi/abs/10.1377/hlthaff.27.2.393

Primm, A. B., Vasquez, M. J., Mays, R. A., Sammons-Posey, D., McKnight-Eily, L. R., Presley-Cantrell, L. R., ... & Perry, G. S. (2010). The role of public health in addressing racial and ethnic disparities in mental health and mental illness. Preventing chronic disease, 7(1).

Primm et al., (2010) have argued that racial/ethnic minority populations are underserved in the American mental health care system. They put an emphasis on the disparity in treatment between whites and African Americans that has increased substantially since the 1990s. Primm et al., (2010) present a model that illustrates how social determinants of health, interventions, and outcomes interact to affect mental health and mental illness. Primm et al., (2010) suggest that public health approaches to these concerns need enhanced surveillance and new public-policies to improve standards and reduce disparities. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2811515/

Blanco, C., Patel, S., Liu, L., Jiang, H., Lewis-Fernández, R., Schmidt, A., Olfson, M. (2007). National Trends in Ethnic Disparities in Mental Health Care. Medical Care, 45(11), 1012-1019. Retrieved July 13, 2021, from http://www.jstor.org/stable/40221575

Blanco et al., (2007) compare trends in office-based treatment of mental disorders between Hispanics and non-Hispanics. From 1993 to 2002, there was an increase in mental health care disparities between Hispanics and non-Hispanics treated by office-based physicians. They highlight the importance of the mental health care for Hispanics as a public health priority, with clear opportunities and challenges for health care policymakers and practitioners.

https://www.jstor.org/stable/40221575?seq=1#metadata_info_tab_contents

Marrast, L., Himmelstein, D. U., & Woolhandler, S. (2016). Racial and ethnic disparities in mental health care for children and young adults: A national study. International Journal of Health Services, 46(4), 810-824. 

Marrast et al., (2016) examine racial and ethnic disparities in children’s and young adults’ receipt of mental health and substance abuse care using nationally representative data from the 2006–2012 Medical Expenditure Panel Surveys. Disparities were generally larger for young adults than for children. Black and white children had similar psychiatric inpatient and emergency department utilization rates, while Hispanic children had lower hospitalization rates. Marrast et al., (2016) concluded that psychiatric and behavioural problems among minority youth often result in school punishment or incarceration, but rarely mental health care. 

https://journals.sagepub.com/doi/abs/10.1177/0020731416662736

Cook, B. L., Trinh, N. H., Li, Z., Hou, S. S. Y., & Progovac, A. M. (2017). Trends in racial-ethnic disparities in access to mental health care, 2004–2012. Psychiatric Services, 68(1), 9-16. 

This study compared trends in racial-ethnic disparities in mental health care access among whites, blacks, Hispanics, and Asians by using the Institute of Medicine definition of disparities as all differences except those due to clinical appropriateness, clinical need, and patient preferences. No reductions in racial-ethnic disparities in access to mental healthcare were identified between 2004 and 2012. For blacks and Hispanics, disparities were exacerbated over this period. Clinical interventions that improve identification of symptoms of mental illness, expansion of health insurance, and other policy interventions that remove financial barriers to access may help to reduce these disparities. 

https://ps.psychiatryonline.org/doi/abs/10.1176/appi.ps.201500453

Oluwoye, O., Stiles, B., Monroe-DeVita, M., Chwastiak, L., McClellan, J. M., Dyck, D., ... & McDonell, M. G. (2018). Racial-ethnic disparities in first-episode psychosis treatment outcomes from the RAISE-ETP study. Psychiatric Services, 69(11), 1138-1145.

This study examined racial and ethnic differences in treatment outcomes among participants in a randomized controlled trial of an intervention for first-episode psychosis called NAVIGATE. In usual community care, non-Hispanic blacks scored higher on measures of psychiatric symptoms and were less likely to receive important services, compared with non-Hispanic whites. In NAVIGATE, racial and ethnic differences in psychiatric symptoms were not evident, although non-Hispanic blacks were less likely than non-Hispanic whites to receive family psychoeducation. 

https://ps.psychiatryonline.org/doi/abs/10.1176/appi.ps.201800067

Back to top

Health inequalities - epilepsy

Szaflarski, M., Szaflarski, J. P., Privitera, M. D., Ficker, D. M., & Horner, R. D. (2006). Racial/ethnic disparities in the treatment of epilepsy: what do we know? What do we need to know?. Epilepsy & Behavior, 9(2), 243-264. 

Szaflarski et al., (2006) have examined the understanding of the minority disadvantage in the clinical management of epilepsy. Research concerning racial/ethnic differences in epilepsy treatment is scarce and limited by methodology, while also suggesting underutilization of state-of-the-art therapies by minorities. They proposed a framework to identify the array of disparities, points of intervention, and interventions. 

https://www.sciencedirect.com/science/article/pii/S1525505006002058

Burneo, J. G., Jette, N., Theodore, W., Begley, C., Parko, K., Thurman, D. J., ... & Task Force on Disparities in Epilepsy Care, on behalf of the North American Commission of the International League Against Epilepsy. (2009). Disparities in epilepsy: report of a systematic review by the North American Commission of the International League Against Epilepsy. Epilepsia, 50(10), 2285-2295.

The International League Against Epilepsy undertook a systematic review of the evidence on disparities in epilepsy with a focus on North American data (Canada, United States, and the English-speaking Caribbean). They have identified access to and outcomes following medical and surgical treatment, disability, incidence and prevalence, and knowledge and attitudes. An exhaustive search (1965–2007) was done, including: (1) disparities by socioeconomic status (SES), race/ethnicity, age, or education of subgroups of the epilepsy population; or (2) disparities between people with epilepsy (PWE) and healthy people or with other chronic illnesses. 

https://onlinelibrary.wiley.com/doi/full/10.1111/j.1528-1167.2009.02282.x

Betjemann, J. P., Thompson, A. C., Santos-Sánchez, C., Garcia, P. A., & Ivey, S. L. (2013). Distinguishing language and race disparities in epilepsy surgery. Epilepsy & Behavior, 28(3), 444-449. 

This study aimed to identify whether race/ethnicity and limited English proficiency impact the likelihood of pursuing surgical treatment for medically refractory epilepsy. Demographic and clinical factors potentially associated with surgical utilization, including self-reported race/ethnicity and preferred language, were gathered from the medical record. Betjemann et al., (2013) found that race and limited English proficiency contribute to disparities in the surgical management of medically refractory epilepsy, especially among Asian/Pacific Islanders and African Americans. 

https://www.sciencedirect.com/science/article/pii/S1525505013002989

Burneo, J. G., Black, L., Knowlton, R. C., Faught, E., Morawetz, R., & Kuzniecky, R. I. (2005). Racial disparities in the use of surgical treatment for intractable temporal lobe epilepsy. Neurology, 64(1), 50-54. 

The purpose of this study was to compare the use of surgical treatment for epilepsy among different ethnic and racial groups with surgically remediable temporal lobe epilepsy (TLE). Of 432 patients diagnosed with TLE, 130 had evidence of mesial temporal sclerosis on MRI studies. Seventy patients underwent surgery; African Americans were less likely than non-Hispanic whites to undergo surgical treatment. African Americans had a 60% less chance to receive surgery than non-Hispanic whites. They concluded that there are disparities in the use of surgical treatment for temporal lobe epilepsy and race appears to be an influential factor related to such disparities. 

https://n.neurology.org/content/64/1/50.short

Back to top

Health inequalities - dementia

Ilene H. Zuckerman, Priscilla T. Ryder, Linda Simoni-Wastila, Thomas Shaffer, Masayo Sato, Lirong Zhao, Bruce Stuart, Racial and Ethnic Disparities in the Treatment of Dementia Among Medicare Beneficiaries, The Journals of Gerontology: Series B, Volume 63, Issue 5, September 2008, Pages S328–S333, https://doi.org/10.1093/geronb/63.5.S328 

Zuckerman et al., (2008) investigated differences in anti-dementia medication use between non-Hispanic White and minority community-dwelling Medicare beneficiaries with dementia. Presenting numerous studies, they have documented disparities in health care utilization between non-Hispanic White and minority elders. 

https://academic.oup.com/psychsocgerontology/article/63/5/S328/592324?login=true

Poon I, Lal LS, Ford ME, Braun UK. Racial/Ethnic Disparities in Medication Use Among Veterans with Hypertension and Dementia: A National Cohort Study. Annals of Pharmacotherapy. 2009;43(2):185-193. doi:10.1345/aph.1L368 

The purpose of this study was to evaluate the utilization of anti-hypertensive and dementia drugs and adherence in a national cohort of veterans aged 65 years or older with a diagnosis of both hypertension and dementia across different racial/ethnic groups. Poon et al., (2009) found that racial/ethnic differences exist in anti-hypertensive and dementia medication use in a cohort of older adults with hypertension and dementia. They believe that healthcare providers should make special efforts to improve medication adherence among minorities. 

https://journals.sagepub.com/doi/abs/10.1345/aph.1l368

Giebel, C., Cations, M., Draper, B., & Komuravelli, A. (2020). Ethnic disparities in the uptake of anti-dementia medication in young and late-onset dementia. International psychogeriatrics, 1-10. 

The aim of this study was to analyse national data on variations in the uptake of anti-dementia medication between people with young-onset dementia (YOD) and late-onset dementia (LOD). Findings highlight the impact that social factors and ethnic disparities have on current usage of anti-dementia medication and the need for more resources to enable equitable use of anti-dementia medication. 

https://www.cambridge.org/core/journals/international-psychogeriatrics/article/ethnic-disparities-in-the-uptake-of-antidementia-medication-in-young-and-lateonset-dementia/6E4181251336602E1296FEC3F7C27E73

Back to top

Health inequalities - brain injury

Saadi, A., Bannon, S., Watson, E., & Vranceanu, A. M. (2021). Racial and ethnic disparities associated with traumatic brain injury across the continuum of care: a narrative review and directions for future research. Journal of racial and ethnic health disparities, 1-14. 

The aim of this study was to conduct a narrative review of the literature, demonstrating how racial and ethnic disparities manifest across the full spectrum of the traumatic brain injury (TBI) experienced in civilian populations. They argued that understanding racial and ethnic disparities is a first step in ensuring equitable care for all individuals with TBI, including raising awareness among clinicians and guiding the development of tailored interventions for racial and ethnic minority populations. 

https://link.springer.com/article/10.1007/s40615-021-01017-4

Back to top

Health inequalities - sleep health

Williams, N. J., Grandner, M. A., Snipes, S. A., Rogers, A., Williams, O., Airhihenbuwa, C., & Jean-Louis, G. (2015). Racial/ethnic disparities in sleep health and health care: importance of the sociocultural context. Sleep Health: Journal of the National Sleep Foundation, 1(1), 28-35. 

Sleep may play an important role in health disparities. The main purpose of this review is to examine the potential ramifications of inadequate sleep in a multicultural context; to identify cultural variations between patient and provider in the delivery of sleep care, borrowing from the medical and psychosocial literature; and propose potential strategies to address sleep disparities. They sum up this review with a possible agenda for the future of sleep health.

https://www.sleephealthjournal.org/article/S2352-7218(14)00009-6/abstract

Jackson, C. L., Powell-Wiley, T. M., Gaston, S. A., Andrews, M. R., Tamura, K., & Ramos, A. (2020). Racial/ethnic disparities in sleep health and potential interventions among women in the United States. Journal of Women's Health, 29(3), 435-442. 

In this review Jackson et al., (2020) describe racial/ethnic sleep disparities and subsequent implications for health from epidemiological and clinical studies. Focussing on factors of intersectionality for female racial minorities. 

https://www.liebertpub.com/doi/abs/10.1089/jwh.2020.8329

Ahn, S., Lobo, J. M., Logan, J. G., Kang, H., Kwon, Y., & Sohn, M. W. (2021). A scoping review of racial/ethnic disparities in sleep. Sleep Medicine. 

Ahn et al., (2021) conducted a review of studies on sleep disparities by race/ethnicity to summarize characteristics of existing studies and identify evidence gaps. One hundred sixteen studies were included in this review. Most studies focused on disparities between Whites and Blacks. Disproportionately fewer studies examined disparities for Hispanic, Asian, and other racial/ethnic groups. Self-reported sleep was most frequently used. This review identified significant evidence gaps in racial/ethnic disparities research on sleep. Ahn et al., (2021) results suggest a need for more studies examining diverse sleep features using standardized and robust measuring methods for more valid comparisons of sleep health in diverse race/ethnicity groups. 

https://www.sciencedirect.com/science/article/pii/S138994572100126X

Back to top