Hosted by the British Neuroscience Association, with support from Alzheimer's Research UK, this online event will explore the importance of Patient and Public Involvement and Engagement (PPIE) in shaping research, improving communication, and building partnerships that lead to more impactful science. Whether you're a researcher, healthcare professional, student or public contributor, join us to discover how collaborative approaches can strengthen research from concept to impact.

  • Understand the principles and value of Patient and Public Involvement and Engagement (PPIE), including its role in improving the quality, relevance and impact of neuroscience research.
  • Identify practical approaches to embedding PPIE throughout the research process, drawing on real-world examples from both laboratory-based and clinical neuroscience research.
  • Develop the confidence to plan meaningful PPIE activities by recognising best practice, understanding common challenges, and identifying resources and opportunities to support future involvement.
Agenda:

2.00 - 2.10pm: Anna Goodman (Research Involvement Manager, ARUK)

  • Introduction to PPIE, including key terminology and good practice principles.

2.10 - 2.55pm: Prof Tara Spires-Jones

  • Why PPIE is important for research and why researchers should consider incorporating patient involvement into their work.
  • Experience within own research and as a grant reviewer
  • Discussion with Jane Tulloch, lab manager, about practicalities of hosting lab tours and events with people living with dementia 
  • Q&A session

2.55 - 3.00pm: Comfort break
3.00 - 3.25pm: Dr Sabrina Kalam            

  • How patient and public involvement can help overcome barriers to clinical research participation for underserved communities.

3.25 - 3.50pm: Dr Nathasia Mudiwa Muwanigwa

  • Working with Black African and Caribbean communities to co-design public engagement events for laboratory-based research.

3.50 - 4.15pm: Dr Calum Hamilton             

  • Different approaches to involving people living with mild cognitive impairment (MCI) and dementia in the development of a Research Fellowship application.

4.15 - 4.25pm: Comfort break
4.25 - 4.55pm: Panel discussion with speakers             

  • Open discussion and Q&A, including reflection on some of the challenges identified in the opening poll.

4.55 - 5.00pm: Closing words

With support from:
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Speakers:

Tara Spires-Jones

Tara Spires-Jones

University of Edinburgh

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Calum Hamilton

Calum Hamilton

ARUK Research Fellow , Translational and Clinical Research Institute, Newcastle University

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Nathasia Muwanigwa

Nathasia Muwanigwa

Alzheimer’s Research UK Fellow, UK Dementia Research Institute at UCL

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Sabrina Kalam

Sabrina Kalam

Clinical Research Fellow, University College London's Dementia Research Centre

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