Communicating Science and Shaping Research: The role of PPIE

Hosted by the British Neuroscience Association, with support from Alzheimer's Research UK, this online event explores the importance of Patient and Public Involvement and Engagement (PPIE) in shaping research, improving communication, and building partnerships that lead to more impactful science. Whether you're a researcher, healthcare professional, student or public contributor, discover how collaborative approaches can strengthen research from concept to impact.

Understand the principles and value of Patient and Public Involvement and Engagement (PPIE), including its role in improving the quality, relevance and impact of neuroscience research.
Identify practical approaches to embedding PPIE throughout the research process, drawing on real-world examples from both laboratory-based and clinical neuroscience research.
Develop the confidence to plan meaningful PPIE activities by recognising best practice, understanding common challenges, and identifying resources and opportunities to support future involvement.

Helpful resources and links:

Alzheimer’s Research UK patient and public involvement resources (including free/online training from other organisations): Involving people affected by dementia in your research - Alzheimer's Research UK
Alzheimer’s Research UK public engagement resources: Public Engagement - Alzheimer's Research UK
County Durham Together Partnership Co-Production Resource (Spectrum of Involvement) Co-production
UK Standards for Public Involvement UK Standards for Public Involvement
PEDRI Good Practice Standards Our Standards - PEDRI
NCCPE Ten principles of high quality engagement Quality Practice | NCCPE

Speaker slides:

Click to download the speaker slides.

Agenda:

Anna Goodman (Research Involvement Manager, ARUK)

Introduction to PPIE, including key terminology and good practice principles.

Prof Tara Spires-Jones

Why PPIE is important for research and why researchers should consider incorporating patient involvement into their work.
Experience within own research and as a grant reviewer
Discussion with Jane Tulloch, lab manager, about practicalities of hosting lab tours and events with people living with dementia
Q&A session

Comfort break
Dr Sabrina Kalam

How patient and public involvement can help overcome barriers to clinical research participation for underserved communities.

Dr Nathasia Mudiwa Muwanigwa

Working with Black African and Caribbean communities to co-design public engagement events for laboratory-based research.

Dr Calum Hamilton

Different approaches to involving people living with mild cognitive impairment (MCI) and dementia in the development of a Research Fellowship application.

Comfort break
Panel discussion with speakers